To make informed health care decisions at every stage of your journey, it is important to know what care options are available, and where to find reliable resources. For example, you may consider exploring alternative types of care alongside traditional medicine, or you may be interested in connecting with patient-centered organizations that focus on enhancing health care quality. As you navigate supplemental care options, it is important you make informed health care decisions to ensure you receive the care you want and need. Here, find resources to connect you with practical, financial, and emotional support during this process.Īs you navigate supplemental care options, it is important you make informed health care decisions to ensure you receive the care you want and need. GARD recognizes coping with a rare disease diagnosis is a continual process and your needs may change over time. Navigating unexpected challenges, coordinating care, and handling financial concerns may feel overwhelming. As you and your caregivers adjust to a rare disease diagnosis, it is normal to be flooded with a wide range of emotions. Here, find resources to connect you with practical, financial, and emotional support during this process. Aberfeld syndrome Burton skeletal dysplasia Burton syndrome Catel-Hempel syndrome Chondrodystrophic myotonia Dysostosis enchondralis metaepiphysaria, Catel-Hempel type Myotonic chondrodystrophy Myotonic myopathy dwarfism chondrodystrophy and ocular and facial abnormalities Myotonic myopathy, dwarfism, chondrodystrophy, ocular and facial anomalies Osteochondromuscular dystrophy SJA syndrome SJS SJS1 Schwartz Jampel Aberfeld syndrome Schwartz-Jampel syndrome Schwartz-Jampel-Aberfeld syndrome Aberfeld syndrome Burton skeletal dysplasia Burton syndrome Catel-Hempel syndrome Chondrodystrophic myotonia Dysostosis enchondralis metaepiphysaria, Catel-Hempel type Myotonic chondrodystrophy Myotonic myopathy dwarfism chondrodystrophy and ocular and facial abnormalities Myotonic myopathy, dwarfism, chondrodystrophy, ocular and facial anomalies Osteochondromuscular dystrophy SJA syndrome SJS SJS1 Schwartz Jampel Aberfeld syndrome Schwartz-Jampel syndrome Schwartz-Jampel-Aberfeld syndrome
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